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website: http://namimass.org/resources/children-families
CHILDREN & FAMILIES NAMI’s Child & Adolescent Action Center: Discussion Groups; Research, Services & Treatment; Federal & State Policy Legislation; Schools & Education; Juvenile Justice & Child Welfare; and Parents, Caregivers & Youth. How to advocate for you child, 25 Tips for Parents Evidence-Based Mental Health Treatment for Children and Adolescents: the information on this website is offered as a completely free service to families and mental health professionals to help ensure that children and adolescents benefit from the most up-to-date information about mental health treatment. The Parents’ How-To Guide to Children’s Mental Health Services in Massachusetts, The Boston Bar Association, with support from Children’s Hospital Boston, has developed the guide to Services in Massachusetts, which answers all of these questions and more. It takes you through the mental health system step by step, from deciding if your child needs care to getting specific services. Dealing with your child’s mental illness, Kenneth Duckworth, MD, Psychiatrist, Professor at Harvard & Medical Director for NAMI (Video)Children’s Behavioral Health Initiative under MassHealth The Children’s Behavioral Health Initiative (CBHI) is an interagency initiative of the Commonwealth’s Executive Office of Health and Human Services whose mission is to strengthen, expand and integrate Massachusetts state services into a comprehensive, community-based system of care, to ensure that families and their children with significant behavioral, emotional and mental health needs obtain the services necessary for success in home, school and community. Grants for Children’s Healthcare Treatments. The United Healthcare Children’s Foundation is seeking grant applications from families in need of financial assistance to help pay for their child’s health care treatments, services or equipment not covered, or not fully covered, by their commercial health insurance plan. To be eligible for a grant, children must be 16 years of age or younger, families must meet economic guidelines, reside in the United States and have a commercial health insurance plan. Qualifying families can receive up to $5,000 to help pay for medical services and equipment such as physical, occupational and speech therapy, counseling services, surgeries, prescriptions, wheelchairs, orthotics, eyeglasses and hearing aids. Grants are available for medical expenses families have incurred 60 days prior to the date of application as well as for ongoing and future medical needs. Parents or legal guardians may apply for grants. Worried About Your Child? Symptom Checker provided by Child Mind Institute. Many psychiatric and learning disorders have symptoms in common, and several disorders may be suggested by the symptoms you select. This tool is not a substitute for a complete diagnostic evaluation by a trained mental health professional. Black Mental Health Alliance of Massachusetts is a membership organization that is committed to improving the quality of mental healthcare among blacks, ethnic minorities, disadvantaged people and the poor. We work through our membership and provide professional development, community health education, advocacy, research and partnerships with individuals, groups, organizations, both public and private, along with Federal, state and private agencies. We serve as the primary and collective voice of Black Americans, ethnic cultural groups and poor people who may not be represented at the mental health policy table in Massachusetts. RosieD Reforming the Mental Health System in Massachusetts The Massachusetts Housing and Shelter Alliance hope that this Young Adult Resource Guide will be used by school psychologists, guidance counselors, and librarians; health professionals, who address the mental and physical well-being of young people; legislators and public officials dedicated to connecting youth to needed services; parents, teachers, and religious leaders, who guide youth each day; and, of course, young people, who are seeking the kinds of resources. MNIP Parent Resources Fact Sheet for parents of children with disabilities and special health care needs. Children’s Trust Fund leads efforts in Massachusetts to ensure that all parents of young children have access to community-based family support resources and the information about child development that they need. The National Child Traumatic Stress Network (NCTSN) was established to improve access to care, treatment, and services for traumatized children and adolescents exposed to traumatic events. The Pediatric IOCDF Committee is focused on the specific needs of OCD-affected children and youth, and their family members. The website provides information and to answer common questions asked by youth and their parents, treatment providers and teachers. The ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community. The Massachusetts Family-to-Family Health Information Center, is a FREE parent-run project at the Federation for Children with Special Needs, that advises families on how to receive benefits and to qualify and apply for MassHealth. In addition, they assist families with children and youth with special healthcare needs in accessing public and private health insurance benefits, community resources, offer a listserv, an annual family conference, conference calls, and host workshops about healthcare financing. Contact project director Beth Dworetzky at 1-800-331-0688, ext. 210 or massfv@fcsn.org. The Federation for Children with Special Needs provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. Most Federation staff members are parents or family members of children with disabilities and people with disabilities. Moving to Young Adult Life: A Legal Guide for Parents of Youth with Mental Health Needs (PDF) Legal-Guide-Order-Form (PDF) prepared by Parent/Professional Advocacy League Family Initiatives: Employment Options currently offers a continuum of three programs for parents with mental illness and their families. The Family Options Program reflects an integration of the strengths-based, recovery and empowerment-oriented principles and evidence-based practices, of Psychiatric Rehabilitation and wraparound in children’s systems of care. The program has a fundamental commitment to understanding and responding to recovery as a family experience and provides direct service, advocacy, and training. The Family Project provides support for building and maintaining family relationships for non-custodial parents, including supervised visitation. The Clubhouse Family Legal Support Project offers legal advice and representation for parents working toward increased contact with their children, and effective use of their custodial rights: as well as training for attorney’s statewide about the legal issues of parental mental illness. Planning for Life After Special Education in Massachusetts – Second Edition Disability Resource Guide from the Pediatric Family Resource Library at the UMass Memorial Children’s Medical Center Mass. Housing & Shelter Alliance_Young_Adult_Resource_Guide_Final_2011 The Temple University Collaborative on Community Inclusion of Individuals with Psychiatric Disabilities has developed a wide-ranging collection of resources for the field. Our knowledge translation activities include peer reviewed publications in national journals, nearly one hundred toolkits, monographs, and guidebooks designed to provide policy and practical guidance to consumers and providers working to expand community participation, and a catalogue of exemplary programs. All of these can be accessed here, at no cost. The UPenn Collaborative on Community Integration is A Rehabilitation Research & Training Center Promoting Communitytion of Individuals with Psychiatric Disabilities, funded by the National Institute on Disability and Rehabilitation rch (NIDRR). For more information, please visit us at: http://tucollaborative.org/resources/resources.html Preventing Custody Loss: Suggestions for Parents with Psychiatric Disabilities PARENTING WITH A MENTAL ILLNESS: PROGRAMS AND RESOURCES. Parenting Education and Support Programs (PESP) bring together parents in structured training programs to increase their skills, offer access to information, and to create support networks in communities. Programs address the needs of diverse groups, including grandparents, fathers, single parents, and parents with disabilities. Massachusetts Society for the Prevention of Cruelty to Children, programs and services Dept. of Children and Families, Family Services Dept. of Children and Families, Youth Services Think:Kids is a non-profit organization that trains adults in a new way of helping kids with social, emotional, and behavioral challenges: Outpatient Family Services and Support Groups More Support Groups Sociedad Latina, viene trabajando con los jóvenes latinos como una manera de contribuir al desarrollo de la nueva generación de líderes Parent/Professional Advocacy League, (PAL) advocates for supports, treatments and policies that enable families to live in their communities in an environment of stability and respect. National Federation for Families for Children’s Mental Health (FFCMH), a national family-run organization dedicated exclusively to helping children with mental health needs and their families achieve a better quality of life. Families for Depression Awareness, helps families recognize and cope with depressive disorders to get people well and prevent suicides Child Mind Institute is dedicated to transforming mental health care for children everywhere. The organization is committed to finding more effective treatments for childhood psychiatric and learning disorders, building the science of healthy brain development, and empowering children and their families with help, hope, and answers. The Child Mind Institute does not accept funding from the pharmaceutical industry. The Council for Exceptional Children, the voice and vision of special education. National Organizations and Information Groups are an invaluable source of information. Experience Journal: Pediatric Depression BPChildren is dedicated to erasing stigma and helping children with bipolar disorder. The Juvenile Bipolar Research Foundation raises and distributes funds for the most promising research into the causes, treatment, and prevention of early-onset bipolar disorder. Reactive Attachment Disorder: http://www.radkid.org , http://www.attach.org/ Children with PTSD Children and Adults with ADHD The Balanced Mind Foundation National Dissemination Center for Children with Disabilities National Organization on Disability, it’s ability not disability that counts National Center for Learning Disabilities Where To Find Help For Your Child – from the American Academy of Child & Adolescent Psychiatry Urban Partnership Resources and Information on Disability and Education (Urban PRIDE) is a not-for-profit organization and community resource center founded in 1997 to empower and support parents of children with disabilities in inner city Boston to improve the lives of children at home, in school and in the community. We aim to improve the availability of and access to culturally responsive disability related support, information, and training for culturally and linguistically diverse families who have children with disabilities, as well as young adults with disabilities in urban Boston. Wrights Law The Special Ed Advocate is a free online newsletter about special education legal and advocacy topics. Subscribers learn about new cases, articles, seminars and training, special offers on books by Pete & Pam Wright, and other useful information about special education law and advocacy. Special Education Activism, working to secure the educational rights of all Massachusetts schoolchildren with disabilities. The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns. community-based peer support programs for young siblings; hosting workshops, listservs, and websites for young and adult siblings; and increasing parents’ and providers’ awareness of siblings’ unique, lifelong, and ever-changing concerns through workshops, websites, and written materials. Find a sibshop near you SibNet is the Internet’s first and largest groups for adult brothers and sisters of people with special health, developmental, and emotional needs. Sibnet Facebook group for adult siblings SibTeen Facebook group SibTeen Yahoogroup SibKids Yahoogroup Connect with other adult sibs in your community Resilient Siblings Group: For girls ages 12-16 who have siblings struggling with emotional, behavioral, or developmental challenges. This group will provide a safe and supportive environment for siblings to connect, explore, and share their unique experiences together, such as witnessing sibling hospitalizations, changes in mood and behavior, and the destabilizing effect illness can have on the entire family. The group will emphasize building resilience through group discussion and activities, expressive art, cooperative projects, and psychoeducation. The girls will build skills for healthy coping with techniques informed by Cognitive Behavioral Therapy (CBT) and Dialectical Behavior Therapy (DBT). Periodic parent meetings will provide parents with information about the group’s progress, guidance and support, as well as a place for parents to give feedback, make suggestions, and offer input. Individual parent meetings can be arranged upon request. The group will be led by Lizzy Green. Lizzy is a Licensed Clinical Social Worker at the Brookline Community Mental Health Center, where she co-coordinates the Child and Adolescent Group Therapy Program. Lizzy works with individual children and families, provides parent guidance and psychoeducation, and leads groups for children. The group is held at the Brookline Community Mental Health Center Thursdays from 5:00 – 5:50 PM. When possible, the group will be billed through insurance. For those unable to use their insurance, a fee will be set on a sliding scale. For more info, or to make a referral, please contact: Lizzy Green, LCSW at (617) 734-3443 ext. 256 or green3321@gmail.com Grandparents can get help from the Department of Elder Affairs which recently updated their Resource Guide for grandparents raising their grandchildren. You can learn all about bullying and what you can do to stop it. Take a look around and you’ll find games and cartoon webisodes that help you Take a Stand. Lend a Hand. Stop Bullying Now! For Kids For Teens For Parents For Educators For Community After Schools Initiative: a comprehensive resource for afterschool information. Bullying and Cyberbullying (Word) Olweus Bullying Prevention Program Boys and Girls Club of Boston, Youth Service Providers Network YMCA of Greater Boston, programs offers healthy, fun and educational programs for toddlers, youth, teens, adults and older adults FEDERAL GUIDE TO HELP PARENTS MAKE SAFE CHOICES WHEN CHOOSING A RESIDENTIAL TREATMENT PROGRAM FOR THEIR CHILDREN – The Federal Trade Commission (FTC) has released the first-ever federal consumer guide to assist parents in choosing a safe residential treatment program for their children. The guide was issued as part of FTC’s investigation into the deceptive marketing practices of some residential treatment programs, which was requested by Rep. George Miller (D-CA): http://www.ftc.gov/bcp/edu/pubs/consumer/products/pro27.pdf RAINN (Rape, Abuse, Incest National Network): The nation’s largest anti-sexual assault organization. Click on the local organization’s name to get the contact info and website: The Trauma Center is a program of Justice Resource Institute (JRI) , a large nonprofit organization dedicated to social justice by offering hope and promise of fulfillment to children, adults, and families who are at risk of not receiving effective services essential to their safety, progress, and/or survival. Victims of Violence (VOV) Program of Cambridge Health Alliance (CHA) 617-591-6360 MASSACHUSETTS: Domestic Violence Resources Massachusetts Office Of Victim Assistance Help Directory In the Aftermath of Crime: A Guide to Victim Rights and Services in Massachusetts (Download PDF) National Teen Dating Abuse Hotline Violence Against People: Domestic Violence Resource Library Abuse can take many forms and can affect many different people, no matter their race, sex or socioeconomic status. Sadly, millions of people are repeatedly abused each year, and often, the victims remain hidden and live with the abuse in secret. Education and empowerment are essential to helping prevent domestic and other forms of abuse from occurring. There are many different types of abuse, including physical, non-physical emotional, verbal, and financial/economic abuse. k here to edit.
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AuthorTerry Alves-Hunter, Foster Parent Advocate Archives
February 2019
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Not in my womb, always in my heart
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Learning & Emotional Assessment Program
(LEAP)
The Learning and Emotional Assessment Program (LEAP) at Massachusetts General
Hospital assesses students and children ages 2 to 22 who have developmental
difficulties and consults with their parents, teachers and care providers.
Our clinical professionals have devoted their training, research and clinical practice to acquiring the specialized skills needed to assess children with learning disabilities, psychological and developmental disorders. Our team loves working with children and has a natural ability to put them at ease. The Department of Psychiatry offers a depth and breadth of resources available at few other hospitals or psychiatric centers, meaning your child receives comprehensive, state-of-the-art care without leaving our campus. Services available at the MassGeneral Hospital for Children include:
Referral forms Clinician's Referral From (PDF) Parent Referral Form (PDF) HIPAA Authorization Form for release of information (PDF) Learn more about: Our Services Our clinical assessments are designed to be a comfortable and often fascinating experience, and we find that many children enjoy the warm, one-on-one attention they receive. In addition, our professionals excel at discussing the benefits of assessments with even the most skeptical of adolescents. Our Staff Our experienced professional staff includes Child psychologists, Licensed clinical psychologists, Neuropsychologists, Certified school psychologists, clinical psychology interns and postgraduate fellows. Our Research Research is an ongoing companion to treatment in the LEAP program, with clinical test data collected daily. This data is used to help participants in LEAP, as well as in other programs and departments. Conditions We Evaluate LEAP treats a variety of conditions and disorders. With the trained resources of Mass General Hospital's Dept. of Psychiatry, we are able to evaluate and treat a variety of conditions and disorders. Contact Us LEAP (Learning and Emotional Assessment Program) 151 Merrimac St., 5th Floor Boston, MA 02114 Phone: 617-643-6010 Boston Medical Center Dr. Augustyn is the Director of the Division of Developmental and Behavioral Pediatrics at Boston Medical Center (BMC) and is a Professor at Boston University School of Medicine. She went to medical school at Loyola Stritch School of Medicine, completed her pediatric residency at UCLA and her Developmental and Behavioral Pediatric Fellowship at Boston University-Boston City Hospital. Her clinical work at BMC primarily involves the evaluation of children with various developmental delays including autism,speech and language delays, global developmental delay, learning disabilities, ADHD to mention a few. Her research work has varied across her career and includes work on the effects of both in utero cocaine exposure and violence on early childhood and parenting and recently she has been a leader in developing the Center for Family Navigation at BU, a national leader in promoting and developing the use of navigators to support families of children with developmental disabilities. Dr. Augustyn is co-editor of The Zuckerman Parker Handbook of Developmental and Behavioral Pediatrics for Primary Care and the section co-editor for Developmental and Behavioral Pediatrics for the online journal UpToDate. She currently sits on the sub board of Developmental and Behavioral Pediatrics at the American Board of Pediatrics and is on the Board of Directors of the Society of Developmental and Behavioral Pediatrics. She is also on the American Academy of Pediatrics planning committee for Practical Pediatrics, their national CME Program. Deborah Frank, MD Dr. Frank is the Director of the Grow Clinic for Children and a board-certified Developmental and Behavioral Pediatrician at Boston Medical Center (BMC). She is also a Professor of Pediatrics at Boston University School of Medicine. Dr. Frank attended Harvard Medical School and completed her residency at Children's Hospital Seattle. After her residency, she went on to complete a fellowship in Child Development at Children's Hospital Boston. Dr. Frank specializes in issues of growth and nutrition and the impact of hunger on child development. Dr. Frank has written numerous scientific articles and papers. Her work has focused on breastfeeding promotion, women and children affected by substance use, nutrition among homeless pregnant women and children, Failure to Thrive, food insecurity, and the “heat or eat” phenomenon, the dilemma that many low-income families face in the winter when they have to make the critical choice between heating their homes and feeding their children. She is especially proud of successfully mentoring many pre-professional and professional colleagues. Cited as a respected authority in her fields, Dr. Frank has frequently given testimony to state and federal legislative committees on the growing problem of hunger and associated hardships in the United States and its effects on our youngest children. She has recently been nominated by Congresswoman Nancy Pelosi to the newly established National Commission on Hunger. She is also an invited member of the Aspen’s Dialogue on Food Insecurity and Health Care Costs. L. Kari Hironaka MD, MPH Dr. Hironaka is a board-certified Developmental and Behavioral Pediatrician at Boston Medical Center. She completed her fellowship at Boston Medical Center. Dr. Hironaka specializes in health services research, health literacy and ADHD, as well as residency training. John Maypole, MD Dr. Maypole completed Pediatric Residency in 1999, and Pediatric Chief Residency in 2000 following his training at Yale University School of Medicine. Dr. Maypole has consistently included primary care, medical education, and in participating in and developing innovative clinical programs for complex children and their families. Dr. Maypole served as Associate Director of the Pediatric Integrative Medicine Education Project and performing Holistic Medicine consults and medical education at Children’s Hospital from 2003-2005. In 2005, Dr. Maypole became Director of the Department of Pediatrics at the South End Community Health Center while serving as an attending physician for the Comprehensive Care Program (CCP) in the Department of Pediatrics at Boston Medical Center. CCP is a multi-disciplinary team of providers who provide enhanced and coordinated primary care to the most medically complex patients and higher risk families in the Pediatric Department, including ex-premature infants, children with special health needs and neurodevelopmental disabilities. In February of 2013, Dr. Maypole came to Boston University/Boston Medical Center to work full time to develop approaches and programs to address this fast-growing segment of the pediatric population. In September of 2014, Dr. Maypole received an award from the Center for Medicare Medicaid Innovation, supporting a 3 year effort for the Massachusetts Alliance for Complex Care/4C program--a consultative, multidisciplinary care support model of care for PCPs and families of medically complex children, of which he is co-principal investigator. He is an associate professor of Pediatrics at BUSM. Dr. Maypole writes child health-related articles for a lay audience, for mainstream media and online publications. Jenny Radesky, MD Dr. Radesky is a board-eligible Developmental Behavioral Pediatrician and a board-certified general pediatrician who recently joined the faculty at Boston Medical Center after completing her fellowship training here. She attended Harvard Medical School and completed her pediatrics training at Seattle Children’s Hospital. Dr. Radesky is a clinician-investigator whose clinical interests include early childhood adversity, attachment relationships, and child self-regulation, as well as teaching trainees methods of observing parent-child interaction. Her research examines mobile/interactive media use by parents and young children and how this effects parent-child interaction and child social-emotional development. She is an active member of the AAP Council on Communications and Media. Arathi Reddy, DO Dr. Reddy is a board-certified Developmental and Behavioral Pediatrician at Boston Medical Center. She attended medical school at Western University of Allied Health Sciences in Pomona, CA and completed her residency at Morristown Memorial Hospital/ University of Medicine and Dentistry of New Jersey in Morristown, NJ. She completed her fellowship at Einstein Montefiore and worked in NYC prior to joining the faculty in March 2011. Jodi Santosuosso, NP, MSN Jodi is a certified nurse practitioner in the Developmental and Behavioral Pediatrics Division at Boston Medical Center. She attended University of Massachusetts College of Nursing and Health Sciences and completed her residency at University of Massachusetts, Boston. She joined the Boston Medical Center and Boston University School of Medicine faculty in April 2007. Jodi has had extensive training in developmental and behavioral pediatrics, gastrointestinal (GI) diseases and ear, nose and throat (ENT) disorders. Laura Sices, MD, MSDr. Sices is a board-certified Developmental and Behavioral Pediatrician at Boston Medical Center (BMC). She attended medical school at University of Pennsylvania in Philadelphia, PA, completed her residency at The Children's Hospital of Philadelphia and completed her fellowship at University of Washington in Seattle, WA. Dr. Sices was on the faculty at Rainbow Babies and Children’s Hospital in Cleveland, OH before joining BMC in 2007. Dr. Sices’ clinical work focuses on assessment and management of children with a variety of different concerns, including developmental delays, speech and language delays and conditions, ADHD, learning disabilities and differences, and autism spectrum conditions. Her academic focus is on developmental screening and the early identification of developmental delays. Naomi Steiner, MD Dr. Steiner is the Director of Training at the Division of Developmental and Behavioral Pediatrics. Dr. Steiner studies how computers train the brain, which is an area of great interest in overlapping fields of ADHD, psychology, neuroscience and education, and closely followed by many as a complimentary or alternative approach to the traditional psychopharmacological treatment of ADHD. She is specifically interested in implementing neurofeedback attention training in schools. She is also interested in teaching self-regulation skills and relaxation breathing in schools. Dr. Steiner is multicultural and multilingual. In 2030 more than 50% of children will be raised bilingual in the United States! Dr. Steiner has written a book on how to successfully raise children bilingual (7 Steps to Raising a Bilingual Child), and instructs medical professional, teachers and parents on how children learn two languages, and how English Language Learners can be successful at school. Mary Ellen Stolecki, NP, MSN Mary Ellen is a board certified pediatric nurse practitioner in the Developmental and Behavioral Pediatrics Division at Boston Medical Center and an Instructor of Pediatrics at Boston University School of Medicine. She specializes in primary care of the Child with Special Health Care Needs (CSHCN) in the Comprehensive Care Program. She also practices in the Pediatric Gastroenterology Division providing specialty care for gastrointestinal (GI) conditions. Her clinical interests are primary care for medically complex children (as well as GI issues) of CSHCN including: care of the premature infant, autism, cerebral palsy, seizures, Down syndrome, Williams syndrome, Turner syndrome,achrondroplasia,and multiple congenital anomalies. Jodi Wenger, MD Jodi Wenger, MD is a graduate of Dartmouth Medical School who completed her pediatric residency at Boston Medical Center. She spent several years on the Navajo Reservation in northeastern Arizona before transitioning back to Dartmouth Hitchcock Medical Center in Lebanon, NH. She served as a pediatric hospitalist, outpatient provider and educator at Dartmouth Medical School. She has always had an interest in children with special health care needs. She worked in the Comprehensive Care Program at BMC as a resident and is thrilled to return. She was the general pediatrician at the multidisciplinary spina bifida clinic at Dartmouth Hitchcock and cared for children with neurologic challenges while on the Navajo Reservation. Dr. Wenger has also had an interest in resident work hour reform and continues to support the software she and her husband created during her chief resident year. Amion, continues to allow one to make fair physician call schedules that can be easily accessed online. Barry Zuckerman, MD Dr. Zuckerman is Professor and Chair Emeritus of Pediatrics at Boston University School of Medicine/Boston Medical Center. He is a national and international leader in child health and development. His research focuses on the interplay among biological, social and psychological factors as they contribute to children's health and development. Dr. Zuckerman and colleagues have developed four programs that transformed health care to better meet the needs of low income and minority children. The success of these efforts is that they are now all national programs; Reach Out and Read, Medical-Legal Partnership, Health Leads and Healthy Steps. In addition to more than 250 scientific publications, he has edited nine books, including three editions of Behavioral and Developmental Pediatrics: Handbook for Primary Care. He has served on prestigious national committees; National Commission on Children, Carnegie Commission on Young Children, Bright Futures, and has received numerous national and international awards including the C. Anderson Aldrich for Child Development and the Joseph St Geme Award for Leadership from AAP, and the Policy and Advocacy award and Health Care Delivery Award from the APA. He has consulted in Turkey, Bangladesh, and Thailand regarding child development. - See more at: http://www.bmc.org/pediatrics-developmentalbehavioral/team.htm#sthash.UrLgPWRv.dpuf |
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